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Welcome

Start here

Welcome! You’re probably here because you’ve noticed something isn’t quite right.

If you’ve experienced pain during sex, trouble inserting a tampon, or if you are unable to tolerate any vaginal penetration you’ve come to the right place.

Let’s begin by taking a deep breath in, right down deep into the belly. Aaaaand release.

The good news is that you are not alone, you are not a burden and what is happening to you right now is not your fault.

You are not broken, you can get better, and the best part is this is no longer your burden to carry alone.

Congratulations on taking a huge step forward by downloading this app. You’ve chosen to educate yourself on the problem and not just hope, pray and dream it will go away.

Together we are going to unpack the complexity, learn more about the pelvic floor, and empower each other through this experience.

Hold on tight!

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Time to talk treatment

Treatment starts here

‘Spending all night on Facebook reading threads from strangers, alone in the dark, under my snuggie, is SO much fun on a Saturday night!’ Said no one, ever.

 

Luckily for you this genius GINA has taken all the research, guesswork, Facebook groups, Youtube videos, and Reddit AMAs off your hands and below you will find a simple, straightforward breakdown of the most common treatments for vaginismus. 

It’s important to remember that vaginismus is a neuropathic pain, meaning the nerves in the body are signaling pain up to the brain from your vagina. Therefore, the best approach to treatment is a holistic and multidisciplinary approach; we want to treat the mind and body in a number of ways together. 

Think of treatment like a buffet; you can pick and choose what you like. Feel like having dessert first? Go for it! Need to spend more time in the appetizer section? You sure can!

So go ahead and work your way through each type of treatment and then we can regroup and go through what a possible treatment plan could look like for you. 

Categories
Glossary

Dyspareunia

Dyspareunia is the term for recurring pain in the genital area or within the pelvis during sexual intercourse. The pain can be sharp or intense. It can occur before, during, or after sexual intercourse.

Dyspareunia and vaginismus are often incorrectly used interchangeably. To be clear, vaginismus (muscle tightening or spasming) causes dyspareunia (pain during intercourse). 

Some common causes of dyspareunia:

  1. Vaginal dryness (due to childbirth or menopause) 
  2. Irritable Bowel Syndrome (IBS) 
  3. Pelvic Inflammatory Disease (PID)
  4. Endometriosis 
  5. Skin infections or disorders (ulcers, broken skin, itching) 
  6. Cystitis 
  7. Cancer treatments (chemotherapy) 
  8. Stress 
  9. Some medications such as contraceptives
Categories
What the hell is going on?

What is vaginismus?

Vaginismus is a recurrent or persistent involuntary vaginal muscle spasm causing vaginal discomfort, burning sensations, and pain.

The involuntary muscle spasms prevent vaginal penetration, which often results in a complete inability to have penetrative sex. 

 

 

Sexual pain disorders, like vaginismus, are commonly misdiagnosed or left unaddressed. There is still no definitive medical test for the diagnosis of vaginismus, so it often takes visits to several doctors or specialists before a diagnosis is obtained. Yippee.

But that’s ok because guess what, sunshine? We’re in this together and your experience with vaginismus is about to get a whole lot easier. 

 

Facts 

Ok, it’s time to talk about some Fast and Furious Facts. 

Just kidding! Reliable statistics for the incidence of vaginismus do not exist.

Unfortunately, due to shame or embarrassment, many people do not seek help (but not you!), while some are given an incorrect diagnosis and are never properly treated.

Healthcare providers don’t really keep statistics on the number of vagina-owners specifically seeking help for vaginal penetration problems (that sucks) and sadly, some resign themselves to a life devoid of a sexual relationship, falsely thinking they can never be healed (that sucks more). 

 

We’ve done the research, and here’s what we do know:

  1. Vaginismus affects approximately 5 – 17% percent of people with vaginas
  2. The American College of Obstetricians and Gynecologists found that one in three people with vaginas will experience painful sex at some point (that’s huge) 
  3. Research suggests that sexual dysfunction is common, with 43% of people with vaginas and 31% of people with penises reporting some degree of sexual difficulty 

And the most important fact of all: VAGINISMUS IS TREATABLE (wahoo for you).

Time to unpack some of this information.

Basically, there are two types of vaginismus; primary and secondary. 

Primary vaginismus occurs when penetrative sex or other vaginal penetration cannot be experienced without pain.

Secondary vaginismus occurs when a person who has previously been able to achieve penetration develops vaginismus.

So what causes these two types of vaginismus? Read on, reader!

 

Categories
Brain-body balance?

Fear, anxiety, and sexual trauma

Let’s talk about sex baby, let’s talk about you and me … and fear, anxiety, and sexual trauma. 

Sorry, Marvin Gaye but this is way more important.

The psychological effects of vaginismus are often treated as secondary to physical pain. However, it’s important to remember that the brain is a key sexual organ, so fear and anxiety can both have a hand in causing pain during sex.

Feelings of fear, stress, or anxiety can make arousal difficult (sexual arousal coming up soon).

This means the vagina might not fully lengthen and there might not be enough lubrication being produced to have comfortable and enjoyable sex. A lack of lubrication causes friction, which can cause pain.

Welcome to the concept of the pain/fear loop. 

When sex hurts, the brain remembers and can start to associate sex with pain – making it a scary experience.

Luckily, sex therapy and cultivating a mindfulness practice can be useful for disrupting the cycle of fear and pain. It can also help manage stress and anxieties that might be negatively impacting your sex life. 

Sexual trauma often creates feelings of anxiety, anticipation, or fear about sex, this can make being present and becoming aroused really hard. 

If you have experienced sexual trauma of any kind, you are not alone. None of this is your fault and we recommend you reach out to your local crisis centre for confidential help and support.

Here are a few good places to start:

  • 1800respect.org.au
  • rainn.org
  • rcne.com

A sex therapist is often best placed to deal with the effects of sexual trauma and will be a great step towards healing and recovery. 

In addition, Cognitive Behavioural Therapy (CBT) involves learning how to manage stress and anxiety through relaxation techniques (breathing exercises too!), positive self-talk, and gradually approaching feared situations.

GINAs have improved through understanding how distorted perceptions and thoughts contribute to painful feelings and experiences.

CBT therapy is also a great companion to some of the physical therapy discussed in the ‘Let’s Talk Treatment’ section. 

Categories
What the hell is going on?

Primary vaginismus

Primary vaginismus is commonly caused by negative messages about sex and sexual relations during childhood. This fear around sex can develop due to several factors such as:

  • Fear of sex, pregnancy, childbirth, or sexually transmitted diseases or infections 
  • Strict religious upbringing or sexual beliefs such as believing sex is wrong or that penetration will cause pain, injury, and bleeding 
  • Limited understanding of genitalia
Categories
Welcome

Before we begin

A few important messages before we begin. 

Here at team GINA, we understand that not everyone who is a woman has a uterus, ovaries, or a vagina. Similarly, not everyone with a vagina is a woman. 

The purpose of GINA is to provide helpful information, via transparent and clear communication. We hope GINA can be a trusted resource among the LGBTIQ+ community and those suffering from vaginismus no matter how they self-identify. Lastly, and most importantly – GINA is no doctor. The information in this app is based on research and a range of personal experiences. The app is an informational resource designed to guide users through their own experiences with vaginismus.

We recommend seeking additional support from healthcare professionals and experts such as gynecologists, pelvic floor therapists, and sex psychologists. 

Categories
Time to talk treatment

Breathing exercises

Yes, breathing exercises! This is where we begin, and I know what you’re thinking, ain’t nobody got time for that! But this is one of the core exercises you must master as a little grasshopper. 

Breathing seems pretty straight forward but breathing to relax the pelvic floor is what we really need to focus on.

Together, we are going to learn the basics of diaphragmatic breathing, aka filling your diaphragm with air, which in turn lowers and relaxes your pelvic floor. 

  1. Sit comfortably. If you are sitting on something, try to sit with your knees bent and your shoulders, head, and neck relaxed. If you are sitting on the floor the same applies; get comfortable and relax your upper body. 
  2. Place one hand on your upper chest and the other just below your rib cage so you can feel your diaphragm move as you breathe
  3. Breathe in slowly through your nose so that your stomach moves out against your hand, the hand on your chest should remain as still as possible (your tummy should kind of feel like a balloon filling with air) 
  4. You will notice your pelvic floor move down and relax (yay!), try and keep this relaxed state as you slowly breathe out through your mouth or nose 
  5. Repeat! 

Categories
Glossary

Endometriosis

Endometriosis is a disorder in which tissue similar to the tissue that forms the lining of your uterus grows outside of your uterine cavity. The lining of your uterus is called the endometrium.

Categories
Brain-body balance?

Isolation and depression

Having vaginismus kinda feels like sitting an exam in a language you do not know. Absolutely useless. 

Feelings of isolation and depression suck and chances are if you are experiencing vaginismus you have felt this way recently. The thing that really sucks is there are probably lots of GINAs all around you, every day and you might never know!

Here’s a fun little game you can play when you are feeling down. Look around you when you are: 

  1. Waiting for a table at a busy cafe – chances are there is a GINA nearby 
  2. Covered in glitter in the mosh pit at a festival – definitely more than one GINA there! 
  3. Watching the Oscars red carpet – Yep there is definitely more than one GINA there too
  4. Sitting in the waiting room at your PFP – kidding! But not really, there will be GINAs there too

 

 

Vaginismus is everywhere! The only way to find GINAs around you is to be brave enough to talk about sexual pain.

No, you don’t need to get a face tattoo and take it upon yourself to educate every person in your homeroom.

When you feel comfortable and secure enough, choose one close friend or confidant, a therapist or a mentor, a parent or a parental figure, and talk to them about your experience with painful sex. OMG, ARE YOU CRAZY! 

Crazier than a 9-month lockdown baby! Talking helps, we are all human and we all crave connection. You don’t have to go into the details, you don’t even have to talk about vaginismus, sex, or vaginas.

One golden nugget to always remember – comparison is the killer of joy. Sounds like Confucius but also could have been some girl at the bar last week, no?

Conversation suggestions

  1. ‘I’m not really feeling myself at the moment, can we do something fun to take my mind off things?’
  2. ‘My body is not responding to sex like it usually does, I am feeling pretty confused’
  3. ‘I’m feeling very isolated by my experience with painful sex’

If you are looking for more helpful ways to start safe and supportive conversations visit the ‘Helpful Conversations’ section of the app.